Just Another Saturday

Jake's sleep patterns seem to be getting worse instead of better. Last night he slept from 9-11 pm, 3-5 am and 7-8 am. Todd had a long talk with the Dr. this morning and we've decided to take him off a couple of the meds they have been giving him that are supposed to be helping him sleep. They obviously are not working...especially when you look at the fact, they give them to him at 9 pm, but aren't fully in his system for a good hour and he's waking up an hour after that and staying awake for several hours. We are also doing away with the sitter tonight to see if that makes any difference. I wouldn't want a stranger trying to sooth me in the middle of the night either. I've got a good feeling about him sleeping tonight, but I'll take any good vibes you want to send my way. :-)

Luke got to come to physical therapy with Jake again today. It is so cool to see how much Luke wants to be here helping Jake. When he comes to therapy, it's more just two brothers playing than hard work. Here is a short clip from part of what they were doing today. http://youtu.be/c0hfOyKGkhY

We are trying really hard to let Luke drive the process and not tell him when he has to go to the hospital or how long he needs to stay. They lay in bed together and watch movies or Luke tells Jake about his day. Today Luke was cruising around in Jake's wheelchair and decided he wants to buy one since they are "fun." Seeing them hang out is a little slice of normal that we all really look forward to.

The other highlight of today was Jake got a small brace for his left hand. As I mentioned last night, he was really bummed he couldn't hold his drumstick in his left hand. One of his therapists had told him her husband was a drummer, so this morning he told her he wants to be able to hold his drumstick. She formed this small brace to go over his thumb that will help hold the base of the stick and he is going to keep working on the grip of his left fingers to hold it the rest of the way. Todd and I thought it was pretty cool she came up with a way to give him hope and continued motivation to do something he loves.