Wanted to post a quick midday update. Jake's communication is starting to move beyond thumbs up and fists for yes and no. Today he wrote on a wipe-board "when will I get my freedom." He is really starting to hate being in bed and having his right arm restrained but we have no choice, he's too busy. He pulled out his feeding tube twice this morning when left unattended and unrestrained for just a few seconds.
He also said "Dad" and "Hi" and attempted "Happy," they were all very quiet but he said them. I was showing him the video from the percussion performance he was in back in May and then showed him a sheet the therapist gave us with different emotions and pointed to Happy and Sad. I wanted to make sure watching the video didn't make him sad since he can't do that right now and he said "hap." Pretty awesome.
He is also showing more movement on his left arm, it's small movements but movements nonetheless. If we bend his arm, he'll push it to be straight.
Dana, this is such awesome news!! I can't wait to stay with him tonight. I am so thankful for all the positive things happening and look forward to everything yet to come. GO JAKE!! Stay strong buddy! Love you, Uncle Ryan
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