"No one knows what it's like for me"

It's so hard to see Jake get frustrated with his progress. He had a total meltdown this evening and all I wanted to do was take away his pain and I couldn't. He doesn't see the progress that he's making day to day, he just wants to walk by himself and drum with both hands and doesn't understand why his body isn't cooperating. He so desperately wants to be at home and is sick of being here. He wants to enjoy his summer and not be going through therapy. And he's right, no one knows what it's like for him. It's a lot for a 10 year old to go through and I can't scoop him up, take him home and make it all go away. Hard for Mom too.

While he can't see it, he is doing better. He is rock solid at sitting, and his breaks during therapy are now in the sitting position instead of laying down. He is needing less and less support while standing and is getting more control with the left hand. He plays this game Kerplunk a lot in therapy and they have him do it while standing in front of  table with a half circle cut out of it. Straws are poked through all these holes, then you drop marbles in on top and try to pull the straws out without the marbles falling. I think the first time he played it was early last week, about a week into rehab. He was shaking so badly because his legs were so weak and it hurt to be leaning on his left arm. Today, he just stood there calmly dropping the marbles in, then slowing pulling all the straws out. Pretty big difference to see his increased stability. They also had him picking up and crumpling pieces of tissue paper with his left hand. It was really hard for him but he did it. At the end, he was building patterns with blocks to match what was on a card, and the therapist says "Make sure that everything is in the right place," and he says back to her "Is that my clue that I did something wrong?" I thought that was pretty funny.

I think (fingers crossed) we've got his sleep figured out. He slept for 11 hours last night with only one, one hour interruption. Best night yet!

I wanted to take a quick second to clarify something on the shirts. I had a couple of questions about if we were selling them as a fundraiser. At this point we aren't making any money on them, we are just passing on the cost in case people wanted one. We may consider a fundraiser in the future, I'll keep you posted.

Specific Prayer Requests:
1. Peace and understanding for Jake so this process is not so hard on him.
2. Continued strength healing of his left side, especially the left ankle and left wrist.