Jake had to get another round of botox on Thursday to help with the tightness in his leg and arm muscles. He had been walking so well towards the end of the summer and even spent quite a bit of time out of his brace at home. The past month, we've noticed a decline in his walking and his left foot was really leaning towards the outside again. It's gotten to the point that it's really hard for him to be without his brace. The botox is supposed to last about three months and his started wearing off at about two months. We were pretty frustrated and I started wondering if there were other options we should start to consider because maybe the botox was no longer effective.
Come to find out when you go through a growth spurt (which he's in the middle of, it seems like he's growing overnight), muscle tone is worse. I don't know why this didn't occur to me before, but it makes perfect sense. When you grow, first the bones grow, the muscles get stretched and then they grow. Both our boys have always had really bad growing pains, so when Jake is already tight, stretched muscles from growing are going to make him even tighter. When I talked to his doctor, he said he has kids that only need botox during growth spurts because their muscle tone gets so bad. Jake needs it regularly, so he's just got a double whammy right now. We're hopeful it will kick in within the next week so things get a little easier for him.
On a totally different note, Jake came home on Friday with the "Student of the Month" award from school. It took a bit of digging to figure out what it was all about...each month one student is chosen per team (there are about 120 kids on a team) by their teacher as the student that exemplifies Respect, Integrity, Safety and Excellent (R.I.S.E.) and Jake was chosen for October. I didn't even know the middle school did these type of awards. :-) The really cool thing was the timing of the award. Luke had received a similar award (Leader of the Pack which is given to one student 3rd-5th grade each quarter) at the elementary school the previous week. Makes for one proud mom.
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